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"Frozen Wings: A Story of Courage Beyond FOP." pan MOHD FARHAN

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Caractéristiques

• "Frozen Wings: A Story of Courage Beyond FOP."
• MOHD FARHAN
• Format: Pdf, ePub, MOBI, FB2
• ISBN: 9798230503873
• Editeur: Sean M. T. Shanahan
• Date de parution: 2024

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Overview

Frozen Wings: A Story of Courage Beyond FOP is a deeply moving and inspirational memoir written by Mohd Farhan, about his sister, Fairy, and the family's unwavering strength in the face of an extraordinary and devastating condition known as FOP (Fibrodysplasia Ossificans Progressiva). At the age of seven, Fairy's life changed forever when a mysterious swelling on her back revealed the onset of FOP, a rare genetic disorder that causes the body's soft tissues to turn into bone, leading to gradual immobilization.

Through the lens of Farhan's emotional account, this book takes readers on a heart-wrenching journey of a family torn between fear and hope, as they fight not only for Fairy's physical well-being but for her spirit, which remains unbroken despite the overwhelming challenges. The story explores the relentless courage of Fairy, who, despite her pain and immobility, has always strived to live a fulfilling life.
With the constant support of her mother, who cares for her every day, and the sacrifices made by her father and brother, Fairy's life has been one of love and resilience. The book gives an honest and raw look at the emotional toll on the family, the struggle of living with an incurable disease, and the small victories that bring joy in the face of despair. Through Frozen Wings, Mohd Farhan shares the emotional weight of watching his sister suffer and how, despite the pain, her courage and hope continue to inspire him.
This book is a tribute to the strength of family, the power of hope, and the unyielding fight to find joy in the most difficult of circumstances. Fairy's story, and her family's journey, is a reminder that no matter how hard life gets, love and courage can help us soar. This is not just a book about FOP-it is a story about love, strength, and the bond between a brother and his sister that will resonate with anyone who has faced adversity and found a way to keep moving forward.